Blogs

August 24, 2010

Savvy had her first day of Pre-K yesterday and LOOOOVVEED it!  She got a smiley face on her first day and her teacher commented that she could tell how much Savvy had worked since her assessment...Mami is thrilled!  I did tell her teacher that Savvy loves Sid the Science Kid and does expect her to break out in a song and dance at some point during the day...a rap perferably...I am sure she will do her best.

Savvy was just as excited this morning to head off to school.  As soon as we walked into the cafeteria I got my hug and kiss and she ran to grab a book and sit by "Her Kids"...so adorable!  The only time she was upset was when I had to pick her up and explain that school is over for the day ... she wants school to be longer!  For now, a half day is just fine.

Savvy has a cold and we expect her to have some type of cold throughout the semester...we are getting our pokeys done on Friday so as long as her liver is happy ... the boogies can stay.

August 3, 2010

Tomorrow, Savvy's Madrina Rosie has a birthday.  I know I am a day early but the last few nights I have been up thinking about how amazing her friendship is.  You see...2 years ago I completely forgot about Rosie's birthday...not a birthday present in sight, not a card...not even a Happy Birthday.

Instead....a week and a half before her birthday I called her and told her we had to have an emergency baptism for Savvy.  I asked her to fly in from Texas ... without hesitation I get an email confirmation with her flight information in my mailbox.  She told me not take Savvy anywhere that she would take care of the baptismal gown..she did not want her out of the house and exposed to anything that could make her sick.  She knew that this was expedited by our priest and it was the first step in having my child ... it is even hard to type 2 years later but I knew if Savvy was going to pass away that  I wanted her baptized and for her to receive her last rights.  I felt that I was given the time to prepare and if I could not help her body...I am not going to go down this path for it was our reality and I don't care to relive it today.

July 16, 2010

I almost don't want to type these words as not to jinx things but...I am so freaking excited....don't read it out loud...just to yourself and maybe then the jinx will not take affect!

In a few weeks....silent DRUMROLLLLLLLLL....we will be celebrating a year of Savannah not having a single hospitalization!  We have had ER visits and of course blood draws...that is our life but NOT ONE hospitalization since last year!

Last year, we spent Super Papi's birthday in Philadelphia.  She was fighting for her life {again!}....I was told "nothing" was wrong and yet OBVIOUSLY something was wrong...kids that have "nothing" wrong don't end up in the hospital with an NG tube up their nose.  I was told she could have cancer...THANK GOD this was not the case.  She had some horrid experiences with residents that had no business touching her (and I informed of the such) but in the end her amazing team believed she simply got "a virus" and could not shake it off.

 

LAST YEAR........................

July 6, 2010

You know she does not stop talking...have no idea where she gets this from and it is so darn cute!  Savvy is doing so well lately...her vocabulary is increasing a great deal and she has not even started school...I can't even imagine what life will be like when she is able to fully express herself!  Watch out!

She informed Robert and myself that she NEEDED a pink backpack for school....We went to Target last night and they were putting out the school supplies (Already!) can you believe this...my child...my baby wants a pink backpack so she can go to school!  And she will actually BE going to school in a few months....it is beyond overwhelming {in a very good way!}!  I knew better then to go down the lunchbox aisle....

June 21, 2010

We are having our first playdate with our new neighbor.  Savvy received a wonderful gift when we looked over and saw pink toys spread all over the yard a few weeks ago just 2 doors down.  We went over and introduced ourselves and it turns out the pink toys belong to another little 3 year old princess!  How wonderful was that?!

We are getting ready (i.e. Savvy is anxiously awaiting and asking a million times over and over when her friend is coming) to make some princess cupcakes and have a playdate with our new neighbor....2 princesses...lots of sprinkles in various colors...2 icing cans...and 1 mami who is brewing the "liquid gold"....I am very excited for her!  I love 3 ... she is healthy and happy...that is all that matters...I love 3 and so look forward to 4!!

Happy Papi's Day!

Wishing you all a very Happy Papi's Day!

June 2, 2010

Savvy is doing great - this kid bounces back amazingly well.  She is currently running around the house in her princess undies since she refuses to wear anything but her belly...because her belly is beautiful!  And we can argue with that?!

 

June 9, 2010

So we headed to the ER last night after a bout of black tarry stool...which is commonly associated with a GI bleed.  I am going to make this short simply because I am tired.  We were sent home last night with a "come back if things don't change" speech.  Her testing looked fine but the Xray showed her spleen to be pretty large...larger then normal for her...not sure becuase it is not her transplant team...actually I think the dr was a bit put off that her transplant team was not the one seeing her but when your kid has what you think is a GI bleed you take her to the local ER not hop on a plane and take her out of state.  Another story for another day.  His only saving grace in my book was his admiration for our little Warrior Princess....he commented about how impressed he was with how she takes her needles for her labs.  This is something that we are proud of her for but frankly wished she freaked out like any other kid because it only happens once in a blue moon...but this is her life.

June 7, 2010

The Balancing Act is airing a segment about COTA and another segment about Savannah!!!  The show airs tomorrow at 7 am on the Lifetime channel...here is the link to the announcement www.thebalancingact.com/

May 31, 2010

Savvy said her prayers grabbed her stuffed "S" (She told Super Papi it is an "S" teddy bear ..."SSSSSSSS" for "Sega"...Sega is how she says, Savannah...gotta love Sesame Street!)- her new fave at night time and passed out!

We had a princess picnic thanks to Super Papi who was up late last night icing and putting sprinkles on cupcakes to surprise Savvy today.  She went searching for buggies at the park and had an awesome time! She walked...I should say skipped with Super Papi to get a pony ride.  As I was videotaping the huge grin on her face I started recalling....3 years ago she wasn't even  6 months old yet...3 years ago we sat in a hospital room at All Children's in St. Pete...yet another hospital admission.  Today, she was enjoying a pony ride.  I believe in miracles.  I am witness to one daily.

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